The last time I ran was the Race for Life in May 2010 with Yasmin. I struggled then to run the 5km and had to walk a bit but thought my legs were just unfit! We played rounders a few weeks later at Youth Cell and after a great hit I went to run and my right leg just didn't work much to the amusement of everyone watching and shouting 'run'!
I didn't really do much about it for a while after that and then started teaching fulltime in October so didn't have time for too much exercise anyway! When I was doing PE with my class I noticed my arms were getting weaker but again thought it was just lack of exercise and didn't relate this to my leg at all.
Eventually in February 2011 as my leg was becoming more noticeable, I went to the doctors who couldn't explain it, and, after a bit of confusion I got refererred to a physio in May 2011. She, knowing my active background, couldn't explain it either so I was then referred to the neurologist at the Norfolk and Norwich Hospital in July 2011. To my surprise almost as soon as I got into my appointment the consultant wasn't interested in my leg, but my arms, shoulders and face! He and his colleague immediately suspected it was Facioscapulohumeral muscular dystrophy (FSHD). I was sent straight down to another department for genetic blood test. The results of which eventually can through in November and confirmed that I do have FSHD.
So, I can no longer run, I can walk but unevenly and hills are very hard work. I can still ride my bike although again hills are a bit of a challenge - one good thing about living in relatively flat Norfolk! I also have the challenge of getting on and off with a cross bar and intend to get a ladies bike soon but I love my bike which I've been riding for the last 14 years!
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| Sue - on the ferry to the Isle of Wight (Feb 2012) |
Eventually in February 2011 as my leg was becoming more noticeable, I went to the doctors who couldn't explain it, and, after a bit of confusion I got refererred to a physio in May 2011. She, knowing my active background, couldn't explain it either so I was then referred to the neurologist at the Norfolk and Norwich Hospital in July 2011. To my surprise almost as soon as I got into my appointment the consultant wasn't interested in my leg, but my arms, shoulders and face! He and his colleague immediately suspected it was Facioscapulohumeral muscular dystrophy (FSHD). I was sent straight down to another department for genetic blood test. The results of which eventually can through in November and confirmed that I do have FSHD.
So, I can no longer run, I can walk but unevenly and hills are very hard work. I can still ride my bike although again hills are a bit of a challenge - one good thing about living in relatively flat Norfolk! I also have the challenge of getting on and off with a cross bar and intend to get a ladies bike soon but I love my bike which I've been riding for the last 14 years!
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