The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Monday, 25 June 2012

Cushions and a basket!

Finally saw my OT this week, she was disappointed because they had sent her something different and not the beanbag cushion she'd ordered for me.  However she went to the 'stores' on her way here and brought me just a normal padded waterproof cushion which is actually ideal and has made bathtime much more comfortable! I think I will ask for another one now so that all my bony bits are supported at once!!

Peter brought me home a great gadget this week too - I now have a washing basket with pop-out legs which is ideal for me as I am able to lift it from the higher position and put out the washing without having to bend down so far.

I had my first Pilates session on Friday which was good but also frustrating!  I hadn't quite realised how many simple movements I can't do now.

Saturday, 16 June 2012

The difficulty with cars…

I have become increasingly aware of the things that I can do and take for granted which Sue now struggles with.  One such area for Sue is the simple pleasure of driving a car.
  • Getting in and out – having room to swing your legs round before attempting to stand and, if the seat is too low, standing up itself then also becomes an issue.
  • Steering – with weakened arm muscles heavy steering that may seem normal to you and me becomes an issue.
  • Changing gears – for the same reason as the point above.
  • Looking over your shoulder – twisting and turning especially when reversing is an issue and therefore good visibility out of the back window is important.
http://images.autoexposure.co.uk/AETA97625/AETV29465499_8_400.jpgTherefore we have a new addition to the family, a lovely little car for Sue.  Why?  Firstly because of the issues listed above and secondly because she’s worth it!