Sue's Update

A number of times over the past 2 weeks I've been talking to Peter and he has said, 'You should blog about that' so here I go!

• Going to the tip with Peter I discovered I can't reach the car boot to pull it down anymore.
• Filling the kettle is hard work - my left arm is quite pathetic now but it's hard to do right handed in our sink, so I now have to use a jug to fill it.
• I shouldn't go swimming and then drive any distance on the same day.  The steering in my car gives me arm ache.  Peter's car is easier to drive but harder for me to get in and out of.
• I had a visit last week from Andrea, the Neuromuscular Care Advisor for Norfolk and Suffolk.  Her role is to provide advice and support (practical and emotional) and oversee all my care etc. It was very helpful to talk through many things with her.  She recommended I apply for DLA and a blue badge.
• I had a dream that my legs were healed and I could run, disappointed to wake up and discover that I couldn't but it has renewed my hope for healing!

Yesterday, Peter accepted a job offer to work for YMCA Norfolk as Project and ICT Implementation Manager and he starts on 30th April.

Alton Towers 13 years on!

Yesterday Peter, Owain, Yasmin, Libby and I left Aylsham at 5.30am to go to Alton Towers. Yasmin won tickets to go in October and we've been looking forward to it ever since. We were there for opening time and left at closing time and had a great day. Last time Peter and I went was 13 years ago....there are now many new rides, much longer queues and to me it seemed a long walk to get anywhere!

Although I can still walk, if quite unevenly, I have started getting pain in my 'glutes' on my left side. It started on Sunday when we walked to church and back - by the time we got home every step was really painful.  Yesterday was much the same - in the morning I was ok (mostly queueing not so much walking!) but by the afternoon each step was very painful again and I felt very frustrated at holding the rest of them up, although they were all very patient with me  - could have done with a wheelchair to be honest.

By the end of the day my body did ache all over but it was worth it to go on all the rides - still love the adrenaline rush!

I had a visit from my Occupational Therapist on Tuesday, she is part of the team from Colman Hospital. She is lovely and very helpful with suggestions of ways to help myself with every day routine/jobs. I think I have adapted without thinking to many tasks - eg. using the table or my other arm to support my arm in eating, drinking, putting make up on and brushing my hair. Yasmin and Peter now have to help tie my hair up for me!

Peter–interview outcome

A great interview this afternoon and my presentation went really well.  The panel have already made their decision and given me a call.  I was told that I couldn’t have done anymore in the interview but unfortunately I was pipped to the post.  Whatever the outcome an exciting new chapter opens in the story of Norwich Youth for Christ!