The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Saturday, 21 April 2012

Sue's Update

A number of times over the past 2 weeks I've been talking to Peter and he has said, 'You should blog about that' so here I go!
  • Going to the tip with Peter I discovered I can't reach the car boot to pull it down anymore.
  • Filling the kettle is hard work - my left arm is quite pathetic now but it's hard to do right handed in our sink, so I now have to use a jug to fill it.
  • I shouldn't go swimming and then drive any distance on the same day.  The steering in my car gives me arm ache.  Peter's car is easier to drive but harder for me to get in and out of.
  • I had a visit last week from Andrea, the Neuromuscular Care Advisor for Norfolk and Suffolk.  Her role is to provide advice and support (practical and emotional) and oversee all my care etc. It was very helpful to talk through many things with her.  She recommended I apply for DLA and a blue badge.
  • I had a dream that my legs were healed and I could run, disappointed to wake up and discover that I couldn't but it has renewed my hope for healing!
Yesterday, Peter accepted a job offer to work for YMCA Norfolk as Project and ICT Implementation Manager and he starts on 30th April.
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