The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Tuesday, 15 January 2013

Belated Happy New Year!

Oops - I hadn't realised how long it had been since I last blogged! Sorry for not keeping you updated. I think I have kind of got used to how my legs and arms are over the last few months and adjusted to life as it is for me at the moment.

In December I had a review meeting with my consultant at Colman Hospital, my Physio and my Neuromuscular Care Advisor. As I said in October, most of my muscle use and strength has been maintained since the previous review with my physio in March, which is great, although my foot drop on my right foot is now much worse. This is my main concern as I now catch my toes a lot leading me to lose balance, stumble and sometimes fall over too.

Carbon Composite
 Matrix Split Toe!
Today I finally had an appointment with Gordon (Orthotist) to look at possibilities for what to wear on my right foot.  I was able to try this carbon fibre device and it really helped me when walking. One of these is now going to be ordered for me.

At my review we also discussed my driving as obviously my right foot is kind of crucial for braking and accelerating and changing between the two. At the moment I feel ok driving but am in the process of booking an appointment at the East Anglian DriveAbility Centre in Thetford for an assessment.

We had a great family Christmas and one of my presents from Peter was a pull along bag on wheels (not quite a suitcase and not quite an old lady shopping trolley either!) for taking my work folders/books to and from school. This is much easier than carrying bags even if it is only from the car and back.

Thank you for all your prayers...would really love to see healing in 2013!