The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Saturday, 6 April 2013

Muscle Tests

So I saw my Physio for muscle tests and she was comparing the results with the tests she did last March. As I thought all the muscles in the back of my legs and bottom have got worse. The muscles in the front of my legs are still doing okay and my arms are not much different, just a bit more weakness in my shoulders.

One of the knock-on effects of this deterioration in my hamstrings etc is difficulty in getting on and getting going on my bike. I need to sit on and get my right foot in place and I used to be able to scoot then with my left leg to get going and then put my left foot on the pedal. Now I have less strength to scoot with my left leg but am also unable to pull my left leg back and onto the pedal. Once I'm going I can still ride but definitely need help to get going.

We went to stay with my sister and family for Easter weekend and had a lovely time together. On Saturday we went to Stanwick Lakes. I was able to join in on my bike once Peter had got me going! I did also need a bit of a push up anything more than a gentle slope.


The search for a car is ongoing and it is looking likely that I will be able to get support through Access to Work to help with the cost of adaptation.

I am now on a waiting list for an assessment at home from the Social Care Occupational Therapists - hopefully it will be quite soon as I do now need help to get out of the bath.

Today I plan to find some new shoes to wear with my splint!