The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Thursday, 29 August 2013

Summer 2013

We are coming to the end of the summer and I realised, and was reminded, that I haven't blogged for ages!

It has been great having the independence of driving wherever I need to or want to again, especially during the summer holidays. We have been able to visit family and friends without having to plan for Peter to drop us off and find time around work. I am now driving without thinking with my hands, if you know what I mean!

We had a great week at Newday camp at the Norfolk Showground with our youth group from church. I managed the camping - the airbed was actually really comfortable to sleep on but  I could not move/climb on it or get off it without Peter's help. We decided to hire a wheelchair for the week to save my energy for walking around the site. This made a massive difference in time and energy saved, but mentally it took some adjusting to!

Another highlight of the summer was our nephew Joshua's wedding to Nikki. It was a great family day celebrating with them and I managed to wear my heels too! Actually heels are really good at holding my foot in place so walking is as ok as it normally is, it's just further to fall if I lose my balance. My general balance is still quite good but my inability to step backwards to maintain balance is my biggest problem hence I have spent quite a bit of the summer falling back onto my bottom and being pulled back up by whichever family member is around!

I have been clearing out the cupboard in the spare room this week and came across lots of old photos. Here are a couple of things I used to be able to do when my muscles worked!! (Ok and it was nearly 20 years ago too...!)

 

 

 

 

 

 

 

 

 

 

One sport I discovered I can still do is putting. On a visit to Southwold I beat the rest of my family!

 

 

 

 

 

 

Yasmin got her GCSE results last week, and Owain got some for this year too.  They both did really well and as very proud parents we took them to Harry Potter Studios for a surprise trip to celebrate the next day!