The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Friday, 6 April 2012

Alton Towers 13 years on!

Yesterday Peter, Owain, Yasmin, Libby and I left Aylsham at 5.30am to go to Alton Towers. Yasmin won tickets to go in October and we've been looking forward to it ever since. We were there for opening time and left at closing time and had a great day. Last time Peter and I went was 13 years ago....there are now many new rides, much longer queues and to me it seemed a long walk to get anywhere!

Although I can still walk, if quite unevenly, I have started getting pain in my 'glutes' on my left side. It started on Sunday when we walked to church and back - by the time we got home every step was really painful.  Yesterday was much the same - in the morning I was ok (mostly queueing not so much walking!) but by the afternoon each step was very painful again and I felt very frustrated at holding the rest of them up, although they were all very patient with me  - could have done with a wheelchair to be honest.

By the end of the day my body did ache all over but it was worth it to go on all the rides - still love the adrenaline rush!

I had a visit from my Occupational Therapist on Tuesday, she is part of the team from Colman Hospital. She is lovely and very helpful with suggestions of ways to help myself with every day routine/jobs. I think I have adapted without thinking to many tasks - eg. using the table or my other arm to support my arm in eating, drinking, putting make up on and brushing my hair. Yasmin and Peter now have to help tie my hair up for me!

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