This morning I had a visit from Liz (a neuromuscular nurse from Colman Hospital who is my key-worker) and Joni my physio. The aim was to review my treatment/support so far and look at any other issues.
We talked through lots of things and I now have a few new things to try and Liz is looking into some other aids that may help me. One of their suggestions was that 'Pilates' would be beneficial for me so I am now looking into local classes.
I should be seeing Angela, my OT, soon with the bath aid she has got for me - am looking forward to a more comfy bathing experience!!
I do feel that I am being very well supported by a great team of people and I can call on them at any time if I need help. I will have another review with them in 3 months time.
We talked through lots of things and I now have a few new things to try and Liz is looking into some other aids that may help me. One of their suggestions was that 'Pilates' would be beneficial for me so I am now looking into local classes.
I should be seeing Angela, my OT, soon with the bath aid she has got for me - am looking forward to a more comfy bathing experience!!
I do feel that I am being very well supported by a great team of people and I can call on them at any time if I need help. I will have another review with them in 3 months time.
Thank you so much for keeping us informed, and for the 'easy to read' style. It flows. Praying along with you on all this. Wendy and I send our love to you all, Barrie
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