The main purpose in starting this blog is to keep you informed of a new challenge in the Atthill household. In November 2011 Sue received confirmation that she has FSHD which is a form of muscular dystrophy. Again we are privileged to be surrounded by friends and family that want to know how things are and how Sue is coping; well this is for you so that we can update you more regularly.We’ve called this blog “Atthill Life” as from time to time we will give you updates on the rest of the family as well.

Tuesday, 22 May 2012

New bike!

I am very excited to finally have a new bike!

It is a folding bike (as modelled and recommended by my good friend Jenny!), so we can take it places for me to ride instead of walk, and I can get on and off it without balancing precariously while trying to lift my leg over the cross bar!!  Have had a trial run to town and school and all good so far (as long as I don't over load the panniers!)

My physio came to visit me at school last week.  She brought a stool on wheels for me to try out and also chatted through other things/strategies that might make my life easier and help me conserve energy. So far I haven't been great at putting them into practice but aim to try!

Thank you for all your messages and prayers. I am very pleased to say that I have had no pain in my hip for the last couple of weeks which has been great and I've been good remembering to use my stick. I used it at school for the first time in Outdoor Learning and one of the children asked "Why have you got a stick? You're not old!" which kind of made my day!

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